{"id":89347,"date":"2021-05-18T12:57:21","date_gmt":"2021-05-18T12:57:21","guid":{"rendered":"https:\/\/barnmedibd.dk\/?p=89347"},"modified":"2022-09-30T07:52:31","modified_gmt":"2022-09-30T07:52:31","slug":"at-vaere-foraeldre-til-et-barn-med-en-kronisk-sygdom","status":"publish","type":"post","link":"https:\/\/barnmedibd.dk\/index.php\/2021\/05\/18\/at-vaere-foraeldre-til-et-barn-med-en-kronisk-sygdom\/","title":{"rendered":"At v\u00e6re for\u00e6ldre til et barn med en kronisk sygdom"},"content":{"rendered":"<div class=\"wpb-content-wrapper\">[vc_row row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;2&#8243; top_padding=&#8221;2&#8243; bottom_padding=&#8221;2&#8243; back_color=&#8221;color-xsdn&#8221; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;2&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; row_height_use_pixel=&#8221;&#8221;][vc_column column_width_use_pixel=&#8221;yes&#8221; gutter_size=&#8221;3&#8243; font_family=&#8221;font-134980&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; zoom_width=&#8221;0&#8243; zoom_height=&#8221;0&#8243; column_width_pixel=&#8221;800&#8243; width=&#8221;1\/4&#8243;][\/vc_column][vc_column column_width_percent=&#8221;100&#8243; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; width=&#8221;1\/2&#8243;][vc_custom_heading text_color=&#8221;color-prif&#8221; heading_semantic=&#8221;h5&#8243; text_size=&#8221;h5&#8243;]At v\u00e6re for\u00e6ldre til et barn med en kronisk sygdom[\/vc_custom_heading][vc_custom_heading text_color=&#8221;accent&#8221; heading_semantic=&#8221;h1&#8243; text_font=&#8221;font-175345&#8243; text_size=&#8221;h1&#8243; text_weight=&#8221;600&#8243;]Det er naturligt at v\u00e6re bekymret for, hvad sygdommen kommer til at betyde for dit barn og jer som familie.[\/vc_custom_heading][vc_column_text text_lead=&#8221;yes&#8221; uncode_shortcode_id=&#8221;161054&#8243;]Det tager tid at v\u00e6nne sig til og finde en accept af den nye realitet. Vrede, sorg, skyld, magtesl\u00f8shed, fortvivlelse og bekymring er almindelige f\u00f8lelser s\u00e6rligt i denne f\u00f8rste periode.<\/p>\n<p>H\u00e5ndteringen af den nye realitet varierer fra familie til familie.Nogle for\u00e6ldre tager det, som det kommer, andre for\u00e6ldre bruger meget tid p\u00e5 at udvikle strategier og finde viden. Det g\u00e6lder om at finde den tilgang, der passer bedst til jeres familie.<\/p>\n<p><strong>Uanset strategivalg er der for alle meget ofte udfordringer p\u00e5 flere omr\u00e5der, f.eks<\/strong><\/p>\n<ul>\n<li>Det praktiske (f.eks. krav om stort overblik og organisationstalent, begr\u00e6nsninger ifht. familieaktiviteter)<\/li>\n<li>Det f\u00f8lelsesm\u00e6ssige (f.eks skyld, overbekymring, fremtidsangst, stress)<\/li>\n<li>Familiedynamikken (parforhold under pres, de \u00f8vrige b\u00f8rn kan f\u00f8le sig oversete)<\/li>\n<\/ul>\n<p>Unders\u00f8gelser og erfaringer viser, at for\u00e6ldre til kronisk syge b\u00f8rn oplever en forh\u00f8jet belastning. Det er derfor n\u00f8dvendigt at tage vare p\u00e5 sig selv og hinanden \u2013 ikke mindst fordi det kan give jer kr\u00e6fter til at hj\u00e6lpe barnet til at f\u00e5 et godt liv med \u2013 og p\u00e5 trods af \u2013 sygdommen<\/p>\n<p>Det er absolut muligt at have et godt og rigt b\u00f8rneliv med en kronisk sygdom, og du\/I kan som for\u00e6lder g\u00f8re en del for at begr\u00e6nse sygdommens indflydelse p\u00e5 dit barns liv. Vigtigst er at st\u00f8tte barnet og hj\u00e6lpe det med at h\u00e5ndtere de udfordringer, som sygdommen giver. B\u00f8rn med kronisk sygdom skal allerede fra en tidlig alder l\u00e6re at tage medicin, klare at f\u00e5 taget blodpr\u00f8ver, blive opm\u00e6rksom p\u00e5 tegn p\u00e5 uro i sygdommen og finde sig i begr\u00e6nsninger i de d\u00e5rlige perioder. Efterh\u00e5nden som barnet l\u00e6rer at tackle disse ting, kan de minimereres til en ekstra facet (og styrke?) i livet \u2013 ikke det centrale.<\/p>\n<p>Barnet er mere og andet end sin sygdom, og bekymringerne fylder ofte mere for os voksne, end de g\u00f8r for barnet. S\u00e5 selv om dit barns vej gennem livet er noget anderledes og mere besv\u00e6rlig, end du havde forstillet dig og h\u00e5bet p\u00e5, s\u00e5 vil du sikkert opleve, at dit barn kl\u00f8r p\u00e5 med det, som det gerne vil og er interesseret i.<\/p>\n<p>Efterh\u00e5nden som videnskaben og forskerne g\u00f8r fremskridt, har vi lov at h\u00e5be p\u00e5, at behandlingen bliver mere og mere effektiv, og at sygdommens gener dermed bliver f\u00e6rre og mindre alvorlige.[\/vc_column_text][vc_column_text]<strong>L\u00e6s evt. mere her:<\/strong><br \/>\n<a href=\"https:\/\/altompsykologi.dk\/2020\/10\/naar-alvorlig-sygdom-rammer-ens-barn\/\" target=\"_blank\" rel=\"noopener\">N\u00e5r alvorlig sygdom rammer ens barn<\/a><br \/>\n<a href=\"https:\/\/www.facebook.com\/colitiscrohnforeningen\/posts\/lider-dit-barn-af-crohn-colitis-ulcerosa-eller-irritabel-tyktarm-den-24-26-april\/2727848863917394\/\" target=\"_blank\" rel=\"noopener\">Lider dit barn af Crohn\/Colitis?<\/a><br \/>\n<a href=\"https:\/\/copa.dk\/wp-content\/uploads\/2019\/10\/COPA_for%C3%A6ldrebrochure_aug19_vers5-web.pdf\" target=\"_blank\" rel=\"noopener\">At have et barn med en tarmsygdom<\/a><br \/>\n<a href=\"https:\/\/www.laeger.dk\/sites\/default\/files\/at_vaere_foraeldre_til_en_teenager_med_kronisk_sygdom_publikation.pdf\" target=\"_blank\" rel=\"noopener\">At v\u00e6re for\u00e6ldre til en teenager med kronisk sygdom<\/a><br \/>\n<a href=\"https:\/\/danskepatienter.dk\/temaer-projekter\/temaer\/boern-med-sygdom\" target=\"_blank\" rel=\"noopener\">B\u00f8rn med sygdom<\/a><br \/>\n<a href=\"https:\/\/www.boerneraadet.dk\/media\/212556\/BRD_Tema_Jeg_er_ikke_min_sygdom_FINAL.pdf\" target=\"_blank\" rel=\"noopener\">Jeg er ikke min sygdom<\/a>[\/vc_column_text][\/vc_column][vc_column column_width_percent=&#8221;100&#8243; position_horizontal=&#8221;right&#8221; gutter_size=&#8221;1&#8243; back_color=&#8221;color-gyho&#8221; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; css_animation=&#8221;right-t-left&#8221; animation_delay=&#8221;500&#8243; sticky=&#8221;yes&#8221; radius=&#8221;xs&#8221; shadow=&#8221;xs&#8221; width=&#8221;1\/4&#8243;][vc_custom_heading text_color=&#8221;color-wvjs&#8221; heading_semantic=&#8221;h5&#8243; text_size=&#8221;h5&#8243;]L\u00c6S MERE[\/vc_custom_heading][vc_column_text uncode_shortcode_id=&#8221;893755&#8243;]<div class=\"su-list\" style=\"margin-left:0px\">\n<ul>\n<li><i class=\"sui sui-arrow-circle-o-right\" style=\"color:#a7a7a7\"><\/i> <a href=\"https:\/\/barnmedibd.dk\/index.php\/2021\/05\/19\/stewardesse-reglen\/\">Stewardessereglen<\/a><\/li>\n<li><i class=\"sui sui-arrow-circle-o-right\" style=\"color:#a7a7a7\"><\/i> <a href=\"https:\/\/barnmedibd.dk\/index.php\/2021\/05\/19\/muligheder-for-stoette\/\">Muligheder for st\u00f8tte<\/a><\/li>\n<li><i class=\"sui sui-arrow-circle-o-right\" style=\"color:#a7a7a7\"><\/i> <a href=\"https:\/\/barnmedibd.dk\/index.php\/2021\/05\/19\/skole\/\">Skole<\/a><\/li>\n<li><i class=\"sui sui-arrow-circle-o-right\" style=\"color:#a7a7a7\"><\/i> <a href=\"https:\/\/barnmedibd.dk\/index.php\/2021\/05\/18\/soeskende\/\">S\u00f8skende<\/a><\/li>\n<\/ul>\n<\/div>[\/vc_column_text][\/vc_column][\/vc_row][vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;50&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;0&#8243; top_padding=&#8221;0&#8243; bottom_padding=&#8221;0&#8243; back_color=&#8221;color-210407&#8243; overlay_alpha=&#8221;50&#8243; equal_height=&#8221;yes&#8221; gutter_size=&#8221;0&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; row_height_use_pixel=&#8221;&#8221;][vc_column column_width_percent=&#8221;70&#8243; position_vertical=&#8221;middle&#8221; gutter_size=&#8221;3&#8243; override_padding=&#8221;yes&#8221; column_padding=&#8221;5&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; medium_width=&#8221;0&#8243; zoom_width=&#8221;0&#8243; zoom_height=&#8221;0&#8243; width=&#8221;1\/2&#8243;][vc_custom_heading text_color=&#8221;color-xsdn&#8221; text_font=&#8221;font-175345&#8243; text_height=&#8221;fontheight-357766&#8243; sub_lead=&#8221;yes&#8221; sub_reduced=&#8221;yes&#8221; text_uppercase=&#8221;&#8221;]Barnet er mere og andet end sin sygdom, og bekymringerne fylder ofte mere for os voksne, end de g\u00f8r for barnet.[\/vc_custom_heading][\/vc_column][vc_column column_width_percent=&#8221;100&#8243; gutter_size=&#8221;3&#8243; override_padding=&#8221;yes&#8221; column_padding=&#8221;0&#8243; back_color=&#8221;color-wayh&#8221; back_image=&#8221;90674&#8243; back_position=&#8221;center top&#8221; parallax=&#8221;yes&#8221; overlay_alpha=&#8221;0&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; zoom_width=&#8221;0&#8243; zoom_height=&#8221;0&#8243; width=&#8221;1\/2&#8243; uncode_shortcode_id=&#8221;100204&#8243; back_color_type=&#8221;uncode-palette&#8221;][\/vc_column][\/vc_row][vc_row row_height_percent=&#8221;0&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243;][vc_column width=&#8221;1\/6&#8243;][\/vc_column][vc_column column_width_percent=&#8221;100&#8243; align_horizontal=&#8221;align_center&#8221; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; width=&#8221;2\/3&#8243;][vc_button button_color=&#8221;color-149476&#8243; border_width=&#8221;0&#8243; link=&#8221;url:https%3A%2F%2Fbarnmedibd.dk%2Findex.php%2Fhomepages%2Fforside-foraeldre%2F|title:Leg%20og%20L%C3%A6r&#8221; button_color_type=&#8221;uncode-palette&#8221; uncode_shortcode_id=&#8221;131330&#8243;]For\u00e6ldre[\/vc_button][\/vc_column][vc_column width=&#8221;1\/6&#8243;][\/vc_column][\/vc_row]\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Det er naturligt at v\u00e6re bekymret for, hvad sygdommen kommer til at betyde for dit barn og jer som familie.<\/p>\n","protected":false},"author":2,"featured_media":90674,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[105],"tags":[29,30,31],"class_list":["post-89347","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-pas-pa-dig-selv","tag-sport","tag-music","tag-style"],"_links":{"self":[{"href":"https:\/\/barnmedibd.dk\/index.php\/wp-json\/wp\/v2\/posts\/89347","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/barnmedibd.dk\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/barnmedibd.dk\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/barnmedibd.dk\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/barnmedibd.dk\/index.php\/wp-json\/wp\/v2\/comments?post=89347"}],"version-history":[{"count":21,"href":"https:\/\/barnmedibd.dk\/index.php\/wp-json\/wp\/v2\/posts\/89347\/revisions"}],"predecessor-version":[{"id":91384,"href":"https:\/\/barnmedibd.dk\/index.php\/wp-json\/wp\/v2\/posts\/89347\/revisions\/91384"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/barnmedibd.dk\/index.php\/wp-json\/wp\/v2\/media\/90674"}],"wp:attachment":[{"href":"https:\/\/barnmedibd.dk\/index.php\/wp-json\/wp\/v2\/media?parent=89347"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/barnmedibd.dk\/index.php\/wp-json\/wp\/v2\/categories?post=89347"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/barnmedibd.dk\/index.php\/wp-json\/wp\/v2\/tags?post=89347"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}